Oh I didn't mention the symptoms with foods I react to: Just instant throat tightness/swelling, paleness, extreme bloating, nausea vomiting diarhhea, severe exertional intolerance in the hours following, cardiac arrhythmia, inability to swallow properly if it's bad enough, low blood pressure or high, just lasting for hours if I actually swallow the offending food. If I don't swallow it won't last as long. It's instantaneous as soon as it's in my mouth and I'm chewing on it it'll start. Like an IgE mediated allergy, except I don't swell up like a balloon externally, all internally.
Some specialist says I likely have MCAS but the testing for it is pretty hopeless, and SO MANY doctors flat out dismiss it as even a real thing. Just absolutely insane state of affairs.
But it's like, I just assume this is some bullshit because I've been basically poisoned by our current environment, and my microbiome destroyed by all these antibiotics for that infection in the past, and there's just no name for the condition. Cannon-fodder immune system destruction leading to loss of immune tolerance or something.
I've brought it all up with Claude 5.5 Opus and shit numerous times it's all useless. Just repeats back what I said basically. Tells me to see specialists I've already seen, etc. Nothing new at all. And if I'm not careful with my query, it'll just block me out too.
Anyone else like this? What do you even do in a situation like this?
But I wanted to ask, how are you holding up with all this?
I would have tried to take help of someone close to me whos in the medical field so they give this time. I am sure you've already tried whatever you could by now